28 February is the World Rare Diseases Day, and Analiza has signed up to the FEDER (Spanish Federation of Rare Diseases) initiative to raise awareness of the problems faced by sufferers.<\/p>\n
A rare disease takes an average of five years for a diagnosis to be made, while ten or more years are needed for a suitable diagnosis in 20% of cases.<\/p>\n
Whenever there is a delay in diagnosis:<\/p>\n
\tThe patient receives no support or treatment (40.9% of cases).
\n\tThey receive unsuitable treatment (26.7% of cases).
\n\tTheir illness worsens (26.8% of cases).<\/p>\n
Travelling in search of diagnosis and treatment<\/p>\n
\tNearly 50% of patients have had to travel outside their home province in recent years due to their illness.
\n\tOf these, 40% travelled five or more times in search of diagnosis or treatment.
\n\t17% of patients could not travel even though they needed to.<\/p>\n
An early diagnosis can be key to preserving the quality of life of people suffering from a rare disease.<\/p>\n
For further information about rare diseases, visit the website (in Spanish): https:\/\/enfermedades-raras.org<\/p>\n
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28 February is the World Rare Diseases Day, and Analiza has signed up to the FEDER (Spanish Federation of Rare Diseases) initiative to raise awareness of the problems faced by sufferers. A rare disease takes an average of five years for a diagnosis to be made, while ten or more years are needed for a… <\/p>\n